Networks
The mission of the National Tay-Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives.
The National Urea Cycle Disorders Foundation is a non-profit organi-zation dedicated to the identification, treatment and cure of urea cycle disorders. NUCDF is a nationally-recognized resource of information and education for families and healthcare professionals.75 South Grand Avenue Pasadena, CA 91105 Telephone: 800-38-NUCDF (800-386-8233) Fax: 818-790-2460 E-mail: [email protected] Website: http://www.nucdf.org
The Alliance is an international umbrella organization for NBIA lay advocacy groups. It started in January, 2012, in conjunction with the kick-off meeting of the European Union funded project TIRCON (Treat Iron-Related Childhood-Onset Neurodegeneration).
Although it may be out of reach today, a cure for each of the NBIA disorders is in our sights. We care deeply about improving the lives of children and adults with NBIA. Our team at NBIAcure will provide support and information to patients, families, clinicians and researchers, initiate new...
Our MissionIn our drive to find a cure for NBIA, we provide support to families, educate the public and accelerate research with collaborators from around the world. Our VisionA world in which NBIA Disorders no longer causes suffering or loss of life. Our GoalsTo provide a supportive environment in which...
NephCure Kidney International is the only organization committed exclusively to support research seeking the cause of the potentially debilitating kidney disease Focal Segmental Glomerulosclerosis (FSGS) and the diseases that cause Nephrotic Syndrome, improve treatment, and find a cure.
The Nephrotic Syndrome Study Network (“NEPTUNE”) is an integrated group of academic medical centers, patient support organizations (the NephCure Foundation and the Halpin Foundation), and clinical research resources dedicated to advancing the understanding and treatment of Minimal Change Disease (MCD), Focal and Segmental Glomerulosclerosis (FSGS), and Membranous Nephropathy (MN). We...
The NET Community helps NET patients and caregivers understand their disease and take part in their care. When you join the NET Community, you can access powerful tools and videos. You can share your experiences and connect with others working to increase awareness about carcinoid and neuroendocrine tumors.
NetDoctor.co.uk is a collaboration between committed doctors, health care professionals, information specialists and patients who believe that medical practice should be based on quality-assessed information and, wherever possible, on the basis of the principles of evidence-based medicine.