Networks
LAL Solace is a support organization that was created to bring LAL Deficiency patients and families together to share experiences, knowledge, and compassion.
LAL SOLACE (Support Organization for Lysosomal Acid Lipase Deficiency – Advocacy, Care and Expertise) was created to bring LAL Deficiency patients and families together to share experiences, knowledge and compassion. E-mail: [email protected]: http://www.lalsolace.org/
National Human Genome Research Institute homepage with a high amount of information about SCID
Leigh’s disease is a rare inherited neurometabolic disorder that affects the central nervous system. This progressive disorder begins in infants between the ages of three months and two years.
We are a UK registered international charity focusing on people who find themselves trapped by disease, poverty and prejudice and we help them to improve their health, lives and livelihoods. Driven by our focus on leprosy, our purpose is to enable children, women and men affected by neglected diseases to...
Les Turner ALS Foundation has been Chicagoland’s leader in research, patient services and education about Amyotrophic Lateral Sclerosis (ALS), serving the vast majority of people with ALS in the area, offering hope and help when it’s needed most.
The LGS Foundation is a non-profit organization dedicated to providing information about Lennox-Gastaut Syndrome while raising funds for research, services and support for individuals living with LGS and their families. The LGS Foundation is based in New York City and provides services and information to thousands of members across the...