Networks
Edimer Pharmaceuticals has announced that dosing has been completed for the first newborn enrolled in the Phase 2 Clinical Trial for EDI200. This marks an important milestone for Edimer and those affected by X-linked hyphidrotic ectodermal dysplasia (XLHED). EDI200 is a new drug being developed for XLHED. If approved, it...
Cold Spring Harbor Laboratory (CSHL) is a private, not-for-profit research and education institution at the forefront of efforts in molecular biology and genetics to generate knowledge that will yield better diagnostics and treatments for cancer, neurological diseases and other major causes of human suffering.
Their mission is to knock colon cancer out of the top three cancer killers. We are doing this by championing prevention, funding cutting-edge research and providing the highest quality patient support services.
CHI is a leading nonprofit dedicated to improving the lives of children and adults living with Congenital Hyperinsulinism (HI). CHI provides a world of information, resources, and support to the HI community. CHI advocates on behalf of patients for better treatments and access to care. CHI is dedicated to increasing...
This information is being provided for those who have been diagnosed with Congenital Sucrase-Isomaltase Deficiency (CSID), caretakers of children with CSID, and physicians and dieticians who need information on CSID. Although every effort has been made to insure the accuracy of the information by collaborating with doctors researching and treating...
Connective Tissue Gene Tests
The Cooley’s Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley’s anemia/thalassemia major.