World Rare Disease Day 2014 Planning Webinar

World Rare Disease Day 2014 Planning Webinar: Ideas and Suggestions to Host Your Own World Rare Disease Day Event

December 11, 2013 – 11:00 am PT (60 minutes) Register today!

With World Rare Disease Day right around the corner (February 28th), this session will explore event ideas to create awareness for your specific rare disease as well as the entire rare disease community as a whole.


  • Julie Cunningham, Parent Advocate
  • Cassie Johnston, Alstrom Angels
  • Julia Jenkins, Rare Disease Legislative Advocates
  • Amy Grover, Global Genes | RARE Project

Moderator: Carrie Ostrea, Advocacy, Global Genes | RARE Project



Global Genes Project

World Headquarters

28 Argonaut, Suite 150

Aliso Viejo, CA 92656

T: 949-248-RARE (7273)