Webinar – Understanding Essential Health Benefits

Global Genes | RARE Project and a host of partners are proud to continue our RARE Webinar Series, a series of educational webcasts this year on relevant and timely topics that should be of interest to the RARE community.

Our upcoming webinar will focus on Understanding Essential Health Benefits and will feature panelists coming at this topic from a different angle.


Understanding Essential Health Benefits:

How this provision of the Affordable Care Act could affect

access to rare disease treatments and therapies

May 1, 2013

11:00 am Pacific Time

Register today – space is limited!


Do you know how the recently passed Affordable Care Act (often referred to as Obamacare) affects you and your family?

Do you understand how an important segment in this ACA called “Essential Health Benefits” may alter your access to the medical therapies and treatments you need?


At this webinar, our panelists will explain the changes that are about to be put into effect, and more importantly, how these changes will affect you, your family, and our entire rare disease community.

Panelists include:

  • Joel White, President, Council for Affordable Healthcare Coverage
  • Eric Gascho, Director of Government Affairs, National Health Council

Please register and join the discussion.



Katie Mastro

Program Manager

Global Genes | RARE Project

Office: 949.248.7273

Ext. 105

Web: www.globalgenes.org