Aniridia Europe and Aniridia Italiana are pleased to announce that the 2nd European conference on Aniridia will take place in Venice from 19th to 20th September 2014, at Fondazione Banca degli Occhi del Veneto Onlus, Venice, Italy, a prestigious venue with dedicated meeting rooms and a 400 place auditorium, just...
Events
The SIOPE – ENCCA Conference, 18 – 19 September 2014 in Brussels, Belgium, is the first event of its kind that sets out to address the most urgent issues in paediatric cancer faced by the pan-European research, health, and patient interest groups – integrating new therapies into standard care, improving quality of...
The European Lung Foundation (ELF) brings together patients, the public and respiratory professionals to positively influence lung health. ELF works all year round with a network of patient organisations in the respiratory field from across Europe. Each year they invite national and European patient organisations, representing a wide range...
The 14th International Conference on Na,K-ATPase and related transport ATPases will cover structure, mechanism, cell biology, health and disease of all P-type ATPases. Leading scientist and representatives of major pharmaceutical companies from all over the world will present and discuss their latest news on P-type ATPases. The conference will...
We would like to invite you to attend the Myotubular Trust’s third European family conference in London on Saturday 12th July 2014. Check in will be from 9.00am for a 9.30am start. The Conference is free-of-charge and provides a unique opportunity for you to meet other affected families and...
The European Working Group on Gaucher disease (EWGGD) was launched as an affiliate of the European Study Group on Lysosomal Diseases (ESGLD). At the ESGLD meeting in Delphi in 1993, the founding of the Group was proposed by Prof. Dr. J.M. Tager, professor of Biochemistry and Prof. dr. R. Goudsmit,...
To commemorate PC Awareness Day this year, we invite you to join us on a leisurely bike ride through Wilder Ranch (same route as was used for the Duathlon) followed by a potluck lunch. We’re calling the festivities PC Picnic Day. This activity will give us the opportunity to bring...
Our 3rd Annual “RARE Patient Advocacy Summit” will be held on September 11-12, 2014 at the Hyatt Regency in Huntington Beach, California. Registration opens June 2, 2014. Agenda to be posted soon! Empowering Patient Advocates to Become Successful Activists A rare diagnosis changes everything. It crashes plans and dreams, knocks you off your...
They paved the way for policy change and handled patients with care and respect. Some helped to show the beauty of genetic variety. Others brought the rare community into the mainstream spotlight. Global Genes has been proud to award these hard working individuals with their annual Champions of Hope awards—giving...
NORD’s Rare Diseases and Orphan Products Breakthrough Summit is the largest and most meaningful multistakeholder event of its kind – Powered by over 30 years of passion and serving the patients and families affected by rare diseases with new channels of answers, advocacy, advancements in research and access to life-transforming...
Date: June 18, 2014 Time: 10:00 am PT / 1:00 pm ET Register here! Health insurance coverage for patients with rare diseases has undergone significant changes in recent years. At the forefront are changes in how the insurance industry designs and delivers benefits and new coverage options created by the...
2014 aHUS Meetups Finding out that you or a loved one has atypical hemolytic uremic syndrome (aHUS) can be difficult. But you are not alone. In fact, sharing experiences with other patients and families affected by aHUS can help decrease isolation and provide valuable information and support....
There is no registration fee to attend the conference; however, you must be registered no later than July 1, 2014 for BDSRA to provide accurate attendee counts to the hotel to ensure everyone’s comfort for an enjoyable experience. Please Note: Hotel room reservations must be made directly with the Columbus...
On May 2, 2014, CODRT will hold our First Annual Symposium on Rare Disease, “Emerging Therapies for Rare Diseases” held at the Smilow Center for Translational Research, 3400 Civic Center Boulevard, Philadelphia PA 19104. The day will not only provide pertinent information from great speakers on “Emerging Therapies for Rare...
Mark your calendars for the first annual Million Dollar Bike Ride to raise money for rare disease research world-wide, organized by the Penn Center for Orphan Disease Research and Therapy and Rare Disease Cycling. Money raised by each rare disease cycling team will be matched dollar-for-dollar towards an associated pilot...
LSV Healthcare Conferences is pleased to annouance its Europe LifeScience Investment and Partnering Summit 2014 to be held on July 7-8 2014 at Brussels, Belgium. It is to be co-located with Europe Next Generation Sequencing Conference 2014 and Personalised Medicine Europe Conference 2014. The conference caters to companies involved in...
LSV Healthcare Conferences is proud to present Europe Oncology Biomarkers and Clinical Development Congress to be held on the April 24-25, 2014 Germany. It is to be co-located with our Europe Outsourcing and Partnering in Clinical Trials Conference and Data Management in Clinical Trials Conference 2014. Why attend? Over the...
LSV Healthcare Conferences is proud to announce its Europe Next Generation Sequencing Conference 2014 to be held on June 2-3, 2014 at Brussels, Belgium. It is to be co-located with Personalised Medicine Europe Conference 2014 and Europe LifeScience Investment and Partnering Summit 2014. Key topics/themes involved: Next Generation Sequencing NGS...
LSV Healthcare Conferences is proud to host its Personalised Medicine Europe Conference 2014 to be held on June 2-3, 2014 at Brussels, Belgium. It is to be co-located with our Europe Next Generation Sequencing Conference and Europe Life Science Investment and Partnering Conference 2014. Key topics/themes involve: Adoption of...