Based on the success of and feedback from the recent RARE Patient Advocacy Summit, we have decided to continue the discussion and dialogue around pressing topics related to living with rare disease.
As a result, Global Genes | RARE Project and a host of partners will be rolling out a our RARE Webinar Series, a series of educational webcasts this year on relevant and timely topics that should be of interest to the RARE community.
Our first webinar in this series will focus on Newborn Screening, and you will be hearing from three panelists all coming at this topic from a different angle.
January 24, 2013
11:00 am Pacific Time
I would encourage you to register and join the discussion. I would also ask that you send this email along to your community and rare friends that might also be interested in the topic.
Contact Nicole Boice [email protected]