FTD Workshop to Develop CDEs and Pathology Data Elements for Future Clinical Studies

The goals of the workshop include: 1) Establish a protocol for standardized collection of first and serial neurological and neuropsychological data on FTD patients within the interested ADCs. 2) Establish FTD-specific pathology data elements, and determine whether the ADC pathology protocol addresses these elements, or modification is needed for a FTD-specific pathology module. 3) Develop a plan to integrate FTD data into the NACC data structure and allow linkage to other ADC 4) Develop a mechanism to roll out new data plan within the ADC community. 5) Formation of a clinical task force for FTD to monitor collection of standardized data.