4th European Conference on Rare Diseases (ECRD 2007)

Patients at the heart of rare diseases policy development!

Dear colleagues and friends,
2007 is a pivotal year for rare diseases. A European policy integrating both national and Community initiatives is taking shape. In Member States, patients, health care professionals and policy makers are developing comprehensive measures and concrete services to improve the living conditions of people suffering from rare diseases. At the same time, the European Institutions are preparing patient-centred recommendations to ensure that the various initiatives being taken are of benefit to the largest possible number of our constituents. Ten years after the creation of Eurordis, the European Organisation for Rare Diseases, we have the pleasure to invite you to attend the 4th edition of the European Conference on Rare Diseases in Lisbon. The previous European Conferences (Copenhagen 2001, Paris 2003, Luxembourg 2005) were a huge success. Lisbon 2007 is the second conference to be held under the E.U Presidency and to be financially supported by the European Commission – DG Public Health. Together, patients and health care professionals shall review policies, strategies and examples of successful action; we shall voice our needs, promote patient-centred policies at national and European levels; and confirm the vitality of the rare disease community in Europe!

2007: the pivotal year for rare diseases!

Terkel Andersen
Co-chair of the programme committee
President of Eurordis

Prof Josep Torrent I Farnell
Co-chair of the programme committee
Fundacio Dr. Robert
COMP member

Location: Lisbon, Portugal

ECRD 2007 registration fees include: attendance at all conference sessions on 27 and 28 November, morning & afternoon tea/coffee breaks, lunch each day, delegate bag, one copy of the conference proceedings (to be published March-April 2008).

For more information: www.rare-diseases.eu