The NCRD 2014 conference is organised by the Finnish Network for Rare Diseases and the Nordic Rarelink Group together with the Ministry of Social Affairs and Health in Finland. The conference will take place at the Royal Crowne Plaza Hotel in Helsinki.
Conference program focuses on the Nordic cooperation within the rare diseases and points out the common challenges faced by people with rare diseases and professionals.
Presentation themes cover e.g. screening and ethics as well as research on the field of rare diseases. Experience based practices and means for empowerment will be opened in the program. New innovations, activities and challenges concerning rare diseases will be discussed during the conference.
The conference offers an excellent opportunity to network and support the exchange of best practices throughout the Nordic countries.
The national plans or strategies for rare diseases or the implementation of the plans in the Nordic countries will also be introduced in the conference. National plans aim to ensure that patients with rare disease have access to high quality care, including diagnostics, treatments and habilitation. Joint action helps patients and professionals share expertise and information across borders.
The conference is open to all who take interest in these issues. The conference language is English and there will be no interpretation.
Contact:
Confedent International Ltd,
Korkeavuorenkatu 30, 00130 Helsinki
Tel: +358 9 5840 9350
E-mail: ncrd2014 [at] confedent.fi