Sickle Cell Disease is an inherited condition characterized by severe bone pains, anemia, recurrent infections and complications of the major organs of the body. This condition is inherited and can be prevented if individuals and the community as a whole take testing seriously. Testing for sickle cell disease carrier state before having children is one way of ensuring that more children are not born with this disease. The test is a simple inexpensive blood test. Talk to your doctor today, email us at [email protected] or call our hotline
The Sickle Cell Disease Advocates of Minnesota (SCDAM) was formed to improve the quality of life for people living with Sickle Cell Disease by creating awareness, providing support and finding resources. We have operated as a volunteer-based organization since 2003.
This year our conference theme is focused on the hidden yet very important aspect of our care. Everyone desires the best healthcare. Every mother desires to see that social situation, financial well-being or race does not influence the care given to her child with sickle cell disease.
We have brought together a group of experts in two broad areas with the goal of enlightening attendees on effective ways to access care for sickle cell disease and stress-free access to financial support for healthcare of persons affected by sickle cell disease.
At the end of this half-day meeting, participants will know what happens behind the scenes before, during and after clinic visits. How are the fees paid? What can we do to ensure the best communication and rapport with our providers? What other help and assistance is available to ensure that my child attainsfull potential in school?
Dawn Lorenz: Clinical reimbursement and claims, Children’s Hospitals and Clinics, Minnesota
Elizabeth McDonough: Clinical nurse coordinator, Hematology Oncology Clinic, Sickle Cell Disease Care Coordinator, Children’s Hospitals and Clinics of Minnesota
Wendy Ringer: Coordinator, Health Information Center, PACER Center, Boomington Minnesota
Bonnie Jean Smith: Parent Training Advocate –Trainer PACER Center
Abdulahi Sheikh: African Wellness Program
Minneapolis Urban League