This date has been coordinated with the DEBRA International Congress (Rome, Sept 20-23) and the World Congress of Pediatric Dermatology (Madrid, Sept 25-27).
After the 2012 Conference several work packages have been initiated, and the results will be presented and discussed at the conference:
- EB Register
- Professionals Training and Education
- Clinical Practice Guidelines (CPG)
- Directory of Centres of Expertise, Candidate Centres & Experts
- Directory of Laboratories & Biobanks
- Expansion of the EB-CLINET Network
Sufficient space will also be given to discuss complex clinical cases, and for networking activities.