2014 “Tribute To Champions of Hope” Gala

They paved the way for policy change and handled patients with care and respect. Some helped to show the beauty of genetic variety. Others brought the rare community into the mainstream spotlight.

Global Genes has been proud to award these hard working individuals with their annual Champions of Hope awards—giving doctors, researchers, organization leaders and advocates a platform to shine over the last two years.

In late September, 2012, on the night of the first gala, the Balboa Bay Club & Resort was bursting with more than 400 guests in honor of Global Genes’ first round of heroes. These tenacious, determined individuals—dubbed “Champions of Hope” were the focus of the event that among its guest list included recording artist and “American Idol” season 5 finalists, Elliot Yamin, Chris Mann and singer-

songwriter Katrina Parker.

On September 22, 2013, during our second annual event, many new and returning patient advocates joined to celebrate the pioneering achievements of individuals and corporations in the rare and genetic disease community. Patients and their families were able to honor Dr. Stephen Groft, the Director of the Office of Rare Disease Research, watch recording artists Cimorelli perform, and enjoy the evening filled with all things Rare!

Patients, advocates, and other members of the rare disease community wait all year for this event, to come together and celebrate the champions who are pioneering research, advocacy, and science for the rare disease community.