Finding out that you or a loved one has atypical hemolytic uremic syndrome (aHUS) can be difficult. But you are not alone. In fact, sharing experiences with other patients and families affected by aHUS can help decrease isolation and provide valuable information and support.
Meet other families affected by aHUS to discuss the challenges of living with aHUS and new strategies for managing the disease and gain valuable information and support
- Disease and treatment
- The effect of isolation on patients and families
- Challenges of being an adult patient versus a family with a sick child
- Resources and support for patients, families and caregivers
- Connecting and maintaining relationships with other aHUS families