It will provide a forum for all stakeholders in rare diseases and orphan products. The ICORD mission is to improve the welfare of patients with rare diseases and their families through better knowledge, research, care, information, education, and awareness. We invite all individuals active in rare diseases and/or orphan drugs,...
Events
This conference will bring together as many distinguished physicians and scientists as possible to define precisely the current problems and to suggest novel approaches to solving them. This will be the only national/international conference to focus solely on pediatric cardiac patients. Additional Information:Â Conference Web Site.
Description:Â The goals of this conference are to (1) continue to advance education on the diagnosis, molecular defects, complications, and treatment of primary immunodeficiency diseases; (2) develop the careers of new scientists in this area of academic medicine and enhance awareness of clinical immunology and its importance in scientific discoveries and...
Description:Â The specific aims of the proposed meeting are to: 1. identify similarities across these diseases, perhaps finding common pathways that could elucidate the underlying pathophysiology of TMJDs and point to novel targets for diagnosis and treatment; 2. promote and engage new and young investigators in TMJD research and 3. develop...
Description:Â 1. To communicate and disseminate new data and concepts concerning known and novel BM components, including biological activities, defined both in vitro and in vivo; molecular and structural biology; assembly and turnover; cell and developmental functions; cellular mechanisms of recognition and adhesion and their downstream effects; roles of BM components...
Description:Â The goals of the pre-clinic conference will be to present up to date information from leaders in the field of pediatric GIST. At this conference the cumulative data of oncologists who have treated patients with GIST will be obtained. Previous treatments that have, or have not, been successful can be...
Description:Â On July 11-13, Genetic Alliance will hold its 2008 Annual Conference at the Bethesda North Marriott in Bethesda, Maryland. Like last year`s conference, which was attended by more than 200 advocates, health professionals, policymakers, industry professionals, and community leaders, the 2008 conference will provide an outstanding opportunity to participate in...
The overall aim of the ICORD 2008 meeting is to develop constructive international collaborations that will result in true advantages for patients with Rare Diseases. It will provide a forum for all stakeholders in rare diseases and orphan products.
The conference fee of £50 or $100 per adult (children under 18 are free) will include three nights at the hotel, plus Tuesday dinner, breakfast, lunch and dinner on Wednesday and Thursday and all conference sessions and events. Each family will need to (a) register with the PC Patient Support...
Dates and venue of the congress The World Rett Syndrome Congress will be held on October 10-13, 2008 at the: Maison de la Mutualit̩ 24 rue Saint-Victor Р75250 Paris Cedex 05 РFrance www.congresmutualite.com Subway stations: Maubert Mutualit̩, Cardinal Lemoine & Jussieu RER: ligne B, station Saint-Michel-Notre-Dame Congress secretariat...
The E-Rare consortium is pleased to announce a workshop on the use of database management systems and biobanks in the field of rare diseases. The aim of this workshop is to bring together a small group of developers/users of such databases from different countries, to let them exchange their experiences...
Goals of this conference were to (1) catalyze a field of mitochondrial research; (2) identify funding goals and mechanisms for funding mitochondrial work; (3) accelerate translation of mitochondrial-directed therapy to orphan diseases; (4) publish the results of the meeting in Cell Metabolism, Nature Medicine, or JAMA; and (5) publish a...
Description:Â The purposes of the working group are to discuss current knowledge related to cost-effective analysis (CEA) in rare diseases, identify gaps in this body of knowledge, and strategize next steps for incorporating CEA into the evaluation of biobehavioral interventions. It is anticipated that the working group will provide recommendations that...
Description:Â Goals of the workshop are to organize and implement a patient registry, establish algorithms that optimize diagnostic testing and identify strategies for the development of therapies. The results of this conference will be useful to investigators interested in these diseases by improving access to research resources important for progress of...
Description:Â The 3rd symposium will assemble eighteen international and twelve U.S. speakers and guests along with leading investigators from the NIAAA funded Research Center for ALPD. It will provide an exciting forum to discuss and exchange cutting-edge science on the following major themes as they relate to the pathogenesis and pathophysiology...
Description:Â It is expected that this scientific workshop will provide the opportunities: 1) To review the clinical course of all available presymptomatic children transplanted for Krabbe disease, to include serial neuroimaging, cerebrospinal fluid findings, and neurophysiologic studies. (Is the defect central, peripheral or both? Are there differences in outcome based on...
Description:Â The major goals in organizing the conference include: (1) Discussion of the current status of salivary gland research and the evolving questions, (2) Cutting-edge presentations on a variety of research projects relevant to salivary gland research, (3) Discussion of emerging fields and future areas of research emphasis, (4) Introduction for...
Description:Â The meeting will bring together scientists from different fields to facilitate interaction and collaboration. It will involve scientists from basic research, industry, government policy makers, and clinicians. The underlying goals of this meeting are to identify new avenues of investigation, to define therapeutic strategies for the maintenance of genomic integrity,...
An important goal of the meeting is to allow ample opportunity for new emerging areas to be represented. Therefore, at least 20% of the invited presentations will be chosen from the submitted abstracts that describe late-breaking news. Participants were able to begin submitting their abstracts in November 2007. All abstracts...
Areas of investigation Autoimmune Diseases Cardiovascular Diseases CNS Drug Delivery Gene Therapy Infectious Diseases Medical Devices Oncology Specialty Pharmaceuticals Therapeutic Vaccines Who should attend Institutional Investors Venture Capitalists Sophisticated Private Investors Business Development & Partnering Executives Chief Scientific Officers Corporate Executives Scientists Further information: http://www.rodmanandrenshaw.com/conferences?id=6