Join your peers at the Rare Disease Leaders’ Forum to gain confidence in the commercial sustainability of the rare disease space and the potential to deliver value and benefit to all stakeholders. Hear from, and meet, a unique executive assembly of R&D leaders who will define optimal collaborative strategies to...
Events
Mark you calendar for our half-day web-conferencewhere industry expert speakers will talk and discuss with the audience the newest topics. Attend to join in on: Real life case studies Keynote presentations Interactive round table discussion See the full panel of speakers: http://www.kakushingroup.com/webinar_template.php?id=66#speakers Do you want to know more, go to...
The 8th Annual Pediatric Clinical Trials Conference will be a three-day, industry focused event, specific to those with responsibilities in Pediatric Clinical Trials, Regulatory Drug Development, and Regulatory Affairs in the Pharmaceutical, Biotech, and Medical Device industries. Key industry and academic experts will address the unique concerns raised by ethics...
World Orphan Drug Congress USA is North America’s Leading Orphan Drug Conference This forum brings together leading pharma and biotech executives to strategize about the opportunities and challenges in commercializing treatments for rare and ultra-rare diseases. The congress speaker faculty are business and scientific industry leaders from North America and...
The Day of Hope Family Conference will take place over two days and culminate in a celebration of hope Saturday night at the Annual Natalie’s Wish Event. The conference will focus on the tremendous research progress CRF researchers have made over the past several years. Conference sessions will include stem...
The CRF is committed to advancing cystinosis research. The 2012 CRF International Cystinosis Research Symposium will allow renowned cystinosis researchers and scientists from around the world the opportunity to present their research in an effort to accelerate treatments and a cure for cystinosis. CRF is pleased to announce Jerry Schneider,...
The specific objectives of this scientific meeting are: 1. To advance our understanding of the pathogenesis (immune, genetic, epigenetic and inflammatory), epidemiology, and current and innovative therapeutic approaches in pediatric rheumatic diseases. 2. To provide a forum for development of collaborations and mentoring for the pediatric rheumatology research community with...
Faced by a harsher economic and political landscape, it is increasingly evident that traditional pharmaceutical sales and commercial models are no longer as effective as they once were. This has required the pharma industry to adapt and develop new customer engagement strategies in order to maintain revenue of existing medications...
The goals of the 2011 symposium are to: 1) provide a forum that facilitates discussion among scientists and clinicians regarding emerging areas of research and technologies applicable to cicatricial alopecia; 2) disseminate the research and clinical progress that has been made in the last five years, 3) foster collaborations among...
Anticipated goals and use of results: 1) Promote and disseminate latest research findings to scientific and medical communities; 2) Initiate research collaborations by providing a forum to share information on basic biology, epidemiology, diagnosis and clinical challenges for skin diseases; 3) Increase attendance of underrepresented minorities at conferences and participation...
Our long-term goal is the improvement of care for infants and children affected by the rare vascular tumors, KHE/KMP and MLT. The overall goal of this workshop is to provide an open forum for an interdisciplinary team of expert clinicians and investigators to accelerate the development of guidelines of care...
The infrastructure for this conference was developed by the MSG, whose investigators have worked for the past 10 years to secure extramural funding and to develop outcome measures for clinical research/experimental muscle and other neuromuscular diseases. The goal of this conference is to help identify commonalities across therapy development in...
Orphan drug development: An opportunity not to be missed… With lower clinical development costs, a growing global market and booming investment levels, orphan drugs are a lot more attractive to large pharma nowadays. Of course, it’s not as simple as that. Greater investment levels don’t always lead to greater returns....
Science Day – Friday 18 November: – Building clinical trials for AKU using a disease severity score index – Nitisinone, from weed killer to wonder drug – Metabolomic investigation in AKU and OA – Enzyme replacement therapy for AKU – Gene therapy for AKU – Novel biomarkers of cartilage and...
NIH/NINDS is launching a Network for Excellence in Neuroscience Clinical Trials (NeuroNEXT) designed to increase the efficiency of clinical trials, to facilitate patient recruitment and retention, to increase the quality of neuroscience clinical trials, and to enable public-private partnerships. The network includes multiple Clinical Sites, one Clinical Coordinating Center (CCC),...
NIH/NINDS is launching a Network for Excellence in Neuroscience Clinical Trials (NeuroNEXT) designed to increase the efficiency of clinical trials, to facilitate patient recruitment and retention, to increase the quality of neuroscience clinical trials, and to enable public-private partnerships. The network includes multiple Clinical Sites, one Clinical Coordinating Center (CCC),...
The World Orphan Drug Congress is the industry-led Orphan Drug conference tackling global trends, market access and collaborations from big pharma, orphan specialists and patient organisations to impact rare diseases. View the 2011 full program for more about key speakers, workshops, strategic topics and industry leaders. Come to The...
The International Alliance of Patients’ Organizations is pleased to announce that the 5th Global Patients Congress: Achieving Patient-Centred Healthcare: Indicators of Progress and Success will be held at the Renaissance, London Heathrow Hotel from 17–19 of March 2012. The 5th Global Patients Congress will examine how we measure the extent...
The Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention; the Maternal and Child Health Bureau, Health Resources and Services Administration; the Division of Blood Diseases and Resources, National Heart, Lung, and Blood Institute, National Institutes of Health; the American Society...
Welcome Professor Edison Liu President, Human Genome Organisation HGM 2012 I would like to invite you to the 16th HGM meeting to be held in Sydney Australia where the main topic is the “Genetics and Genomics in Personalised Medicine”. The focus of this meeting is consistent with one of the...