Rose Meyer

Overview

FPIES  Food Protien Induced Entercolitis Syndrome

This medical condition has just recently recieved a medical code, so hopefully it will be entered to this site soon. The condition can be present at birth or appear at a later time. It is a Non IGE reaction to foods and perhaps enviromental smells. Some children will react to simply the scent of certain foods cooking.  I am the Grand Aunt of Michael who was born with severe reactions to ALL foods. The reactions are typically delayed two to four hours after ingestion. Most sufferes have found several foods that are 'safe' for them. Many children will outgrow the condition. Sadly most have gone from Doctor to Doctor for years in search of a diagnosis. Hopefully with receiving a code children and their families will now be able to find a Doctor who recognises the condition and help ease the pain and frustration this condition creates. I highly recommend you visit the FPIES site on google for more detailed info.

Symptoms

FPIES sufferers react to all most all foods several hours after injestion. It causes severe abdominal pains, repeative (projectile) vomiting, bloodly mucous stools. Reactions can last for days. The danger lies in the colapse of the circulatory system and thus hypo volemic shock. Treatment requires immediate fluid replacement via IV. Failure to Thrive is a co-condition. Each case is different. There is known known 'safe' food for all victims. Safe foods are found via food trials and documenting reactions.

Causes

Un known

Prevention

un known

Diagnosis

It remains a diagnosis of exclusion. Upon ruling out dozens of other condtions via numerous medical tests. Thus finding a Doctor already knowledgble on FPIES will expidite the diagnosis. To date this is a limited pool to choose from, however if your child has extreme digestive issues I highly recommend you go to the FPIES web site and ask the members for a Doctor near you.

Prognosis

It appears that most will outgrow the condition typically by age 5.

Treatment

The use of elemental formula. Food trials.

Resources

Google FPIES.