Milwaukee, WI – Kerry Hughes, President and Founder of Harmony 4 Hope (H4H), has been named the Mellowes Center’s Rare Disease Ambassador. Kerry has dedicated her career to elevating the voices of those affected by rare diseases, building impactful partnerships that align with our mission—translating genomic research into real-world advancements that improve patient care.
At its core, Harmony 4 Hope believes in the transformative power of music and storytelling—not only to inspire scientific discovery but also to educate future physicians and researchers while uniting communities in rare disease awareness. Through song and story, H4H has emerged as a recognized leader in rare disease advocacy and research—an approach that deeply resonates with the Mellowes Center’s commitment to patient-centered care.
In her role as Rare Disease Ambassador, Kerry will foster deeper connections between patients, clinicians, and researchers, ensuring that patient voices remain central to scientific discovery.
“Together, we will co-host Rare Storytellers, an initiative blending music and narrative medicine to advocate for improved diagnosis, treatment, and education in rare diseases. Through her leadership, we will expand collaborations that fuel innovation and keep patient experiences at the heart of our research.”
The Mellowes Center remains steadfast in its commitment to the rare disease community, and Kerry’s appointment reinforces our dedication to meaningful engagement.
“We look forward to developing new events, expanding educational opportunities, and exploring funding avenues that drive progress in rare disease research and care.”
“Please join us in celebrating Kerry Hughes in this vital new role. Together, we will accelerate rare disease research and ensure that each discovery translates into real impact for patients and families.”
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