2014 aHUS Meetups
Finding out that you or a loved one has atypical hemolytic uremic syndrome (aHUS) can be difficult. But you are not alone. In fact, sharing experiences with other patients and families affected by aHUS can help decrease isolation and provide valuable information and support. Meet other families affected by aHUS to discuss the challenges of living with aHUS and new strategies for managing the disease and gain valuable information and support.
Please join us for a special forum moderated by
Dr. Ruth McDonald
Seattle Children’s Hospital
(Reception dinner will be held on Friday, May 30, 2014 at 7:00 pm)
Dealing with a rare disease such as aHUS can be an isolating experience for patients and their families. The forum offers an opportunity to speak on several important topics relating to aHUS, including:
- Disease and treatment
- Challenges facing patients, families and caregivers
- Resources and support for patients, families and caregivers
- How to connect and maintain relationships with other patients in the aHUS community
Please visit: www.globalgenes.org/ahus to learn more, submit questions and R.S.V.P.