Skip to content
CheckOrphan
  • Home
  • About Us
  • Log In
  • News
    • All News
    • Finance
    • Treatment
    • People
    • Research
  • Videos
  • Treatments
  • Clinical Trials
  • Access Programs
    • About Access Programs
  • Diseases
  • Events
  • Networks
  • Research
Main Menu

Subscribe for Free Newsletter

Email *

Type *

* Required Field
Email Marketing Services by Benchmark

Generate RSS

  1. Home
  2. /
  3. Video
  4. /
  5. Anisa’s Story

Anisa’s Story

September 1, 2017[email protected]
https://www.youtube.com/watch?v=1kfCzC0Kfnw&t=24s

Anisa is a young girl from Canada living with Mucopolysaccharidosis (MPS) Type I. Anisa and her mother, Jen, share their story from Anisa’s first symptoms to her diagnosis just after her first birthday – and a life filled with playing dress up, dance, and hide and seek. To learn more about MPS and other patients like Anisa, visit https://www.mps1disease.com.

News

  • Nuvation Bio Announces Publication of Positive Phase 2 Study Results f
  • Latus Bio Secures FDA IND Clearance for LTS-101 in CLN2 Disease, Earns
  • Quetzal Therapeutics Launches Phase III Clinical Trial of Oral QTX-210
  • Belite Bio Announces Positive Topline Results from the Pivotal Global,
  • Cullinan Therapeutics Receives FDA Fast Track Designation for CLN-049,
More News

Access Programs

  • Jonsson Comprehensive Cancer Center – Progressive Metastatic Cas
  • Massachusetts General Hospital – Healthy Naturally Cycling Women
  • Kite, A Gilead Company – Relapsed/Refractory Primary Mediastinal
  • Kite, A Gilead Company – Relapsed/Refractory High-Grade B-Cell L
  • Kite, A Gilead Company – Relapsed/Refractory Transformed Follicu
More Access Programs
pw

About CheckOrphan

CheckOrphan is a non-profit organization located in Basel, Switzerland and Santa Cruz, California that is dedicated to rare, orphan and neglected diseases. CheckOrphan offers users an interactive and dynamic platform for all these diseases. This strategy allows visitors to be updated daily on all the latest news and interact with people internationally. This is essential, because due to the nature of these diseases, there is not a large concentration of individuals within any given proximity.
Click here to know more About Us

Your email is important to us

Each email is sent to a CheckOrphan staff member and will be answered. We only use a contact form to avoid spam.

    Copyright © 2025 CheckOrphan.
    Developed by: Gonza.io logo Developed by: WebOptimalSolutions Powered by: Cloudscale logo