International Pompe Association

The International Pompe Association (IPA) is a federation of Pompe disease patient's groups.

Paula Waddell, c/o VSN  
Luitenant Generaal van Heutszlaan 6  
3743 JN Baarn  
Netherlands 
Telephone: +31(35)5480480  
Fax: +31(35)5480499  
E-mail: [email protected] 
Website: http://www.worldpompe.org/