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Brussels, Belgium – Multiple sclerosis (MS), an inflammatory disease of the central nervous system, affects more than 1 million people in Europe and an estimated 2.8 million worldwide. MS is characterized by an inflammation-related loss and damage of the myelin layer in the brain and spinal cord, which insulates the...
She is living her life to the fullest, even though she can’t walk or talk. Twelve-year-old Breanna Leatherwood of Tuscaloosa is one of about 50 females in Alabama known to have Rett syndrome, a neuro- developmental disorder that affects a gene on the X chromosome and occurs almost exclusively in...
The EveryLife Foundation for Rare Diseases is accepting applications for a scholarship program that aims to help adults with a rare disease pursue personal goals through training and education. For a second year, the #RAREis Scholarship Fund — supported by Horizon Therapeutics – will award 35 one-time scholarships, each worth $5,000, to cover a winning applicant’s...
NEWBURYPORT — Colton Fontaine was the picture of good health. A standout athlete during his days at Newburyport High, Fontaine went on to enjoy a successful college baseball career at Salem State and now serves as the program’s top assistant coach. But that all changed in the blink of an...
CHICAGO & CAMBRIDGE, Mass. – Exicure, Inc.® (NASDAQ: XCUR), a pioneer in gene regulatory and immunotherapeutic drugs utilizing spherical nucleic acid (SNA™) technology, today announced the appointment of Brian C. Bock as the Company’s Chief Financial Officer (CFO) effective immediately. “Exicure’s proprietary SNA platform technology holds great potential for treating...
Sarah Shillcutt of Jacksonville was just 10 days old when she was diagnosed with a rare genetic disorder that can cause mental retardation and seizures unless treated with a strict, low-protein medical diet. Now 13, she opts for a simple explanation when people ask about her unusual eating habits. “I...
Only one in 10 million babies are born with the rare disease that this Hounslow toddler battles with. His genetic liver condition means calcium crystals build up in Archie’s body and without a liver transplant the illness can be fatal. Archie’s life was saved by his mum, who donated a...
Preparations are taking place for a family fun day which will be held in Montrose later this summer. The Over the Rainbow event is being planned as a final fling outdoors for families on Sunday, September 6 and as a commemoration of Montrose’s “butterfly girl” Adana Forsyth. The day has...
After weeks of planning, the fund-raising walk for Bridger Gustafson will take place this Saturday, June 13, at Constitution Park in Lovell. The fun-for-the-family event will take place at 7 a.m. Bridger, the 5-year-old son of Blake and JanaLee Moncur Gustafson of Carrollton, Texas, and the grandson of Brent and...