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    3rd Nordic Conference on Rare Diseases

    4–5 September, 2014

    The NCRD 2014 conference is organised by the Finnish Network for Rare Diseases and the Nordic Rarelink Group together with the Ministry of Social Affairs and Health in Finland. The conference will take place at the Royal Crowne Plaza Hotel in Helsinki Conference program focuses on the Nordic cooperation within the rare diseases and points out the common challenges faced by people with rare …

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    International Congress 2014 of the European Respiratory Society

    6–10 September, 2014

    The European Lung Foundation (ELF) brings together patients, the public and respiratory professionals to positively influence lung health. ELF works all year round with a network of patient organisations in the respiratory field from across Europe Each year they invite national and European pat

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    RNase H 2014 Meeting

    7–10 September, 2014

    RNase H 2014 will be hosted under the auspices of the RNA Society. As in the past, the focus will be on the many aspects of RNases H including structure, biochemistry, genetics and the nature of their substrates. The meeting provides a unique opportunity to bring together experts in each of these areas to obtain the most up-to-date information providing valuable new insights. The meeting will be …

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    Advancing Symptom Clusters Research on Rare Cancers

    Wednesday, 10 September, 2014

    It is intended that the in-depth, interdisciplinary dialogue of this expert working group will formulate an emerging consensus on a working definition of symptom clusters and, specific gaps and opportunities that provide a foundation for a transformative strategic blueprint to guide future symptom cluster research in rare cancers. In addition, it is anticipated that workshop proceedings will …

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    Mechanistic and Therapeutic Insights Into Skeletal Biology Learned From the Study of Rare Bone Diseases

    Thursday, 11 September, 2014

    George R. Brown Convention Center, 1001 Avenida De Las Americas, Houston, TXThe Mechanistic and Therapeutic Insights into Skeletal Biology Learned from the Study of Rare Bone Diseases Workshop Summary: To date, nearly 500 unique rare bone diseases have been described, which in the aggregate affect 1 in 5,000 live births, and comprise 5% of all birth defects.

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    2014 RARE Patient Advocacy Summit

    11–12 September, 2014

    A rare diagnosis changes everything. It crashes plans and dreams, knocks you off your feet, and requires a continual investment of time and money as you try to determine what should be your next step.

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    2014 MDF Annual Conference

    12–14 September, 2014

    The 2014 Myotonic Dystrophy annual conference will focus on educating the MDF community about the clinical trial process and will provide more formal and expanded community networking opportunities.

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    2014 “Tribute to Champions of Hope” Gala

    Saturday, 13 September, 2014

    They paved the way for policy change and handled patients with care and respect. Some helped to show the beauty of genetic variety. Others brought the rare community into the mainstream spotlight.Global Genes has been proud to award these hard working individuals with their annual Champions of Hope awards—giving doctors, researchers, organization leaders and advocates a platform to shine over t …

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    15th International Conference on Human Genome Variation and Complex Genome Analysis (HGV2014)

    17–19 September, 2014

    It is with great pleasure that we invite you to attend HGV2014, a key event on the international genomics calendar where you will hear the latest advances from acknowledged opinion leaders in this rapidly evolving areaHGV2014 will bring together approximately 100 delegates (selected on the basis of their abstract submission) in a workshop-style atmosphere, with 25 internationally recognized …

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    Orphan Drug Summit 2014

    17–19 September, 2014

    If you are looking at profiling and associating your organization to a high-quality program, you should not miss the third Orphan Drugs Summit, an excellent platform to have face-to-face contact and initiate new business relationships with senior orphan drug professionals115 C-level, scientific and senior orphan drugs’ professionals from pharma and biotech industries joined our launch event in …

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